Disorders We Support

We offer support to families dealing with various metabolic and fatty oxidation disorders. Although treatment may be different, the road that we travel is very similar! Let us help you navigate that road!

In Memory of Scarlett

Scarlett’s memory is alive through a generous donation to the Louisiana Metabolic Disorders Coalition that was raised through a t-shirt fundraiser to memorialize their precious little girl.

Dietary Resources

Low Protein Recipes:

Recent Calls to Action

Show Support for the Newborn Screening Saves Lives Reauthorization Act

The Newborn Screening Saves Lives Reauthorization Act will continue critical federal programs that provide assistance to states to improve and expand their newborn screening programs, support parent and provider education,…

Call for Senate Co-Sponsors of the MNEA

Join us to encourage Senators to support the Medical Nutrition Equity Act (MNEA) which will help secure insurance coverage for medical food & formula for inborn errors of metabolism and…