Hi, I’m Will Singletary and I have PKU. I’m a senior at Westlake High School in Austin, TX. I was born right after hurricane Katrina in 2005 in Opelousas, but my family moved to Austin in 2015. I am on diet and take Kuvan, and have had well controlled levels my whole life.
My parents have been active advocates for metabolic disease since I was born, but I’ve joined them in the last few years, developing my own voice to help our community.
I have traveled to multiple NPKUA conferences, Rare Disease Week in Washington, D.C., and to the United Kingdom for the European conference meeting this year!
I’m a competitive swimmer, water polo player, and accomplished violinist in the Westlake Symphony Orchestra, performing on-stage in the Nutcracker Spectacular production this year. I love to play my violin, ski, and challenge myself in all sorts of ways.
I have been accepted to Colorado School of Mines and will start this Fall, studying Mechanical Engineering.
PKU has given me so much opportunity, and made me who I am today, and I’m truly grateful! I appreciate the LMDC for connecting us in Louisiana, and supporting our community.
Submit Your Story
This community is incredibly diverse, and learning from one another helps each of us understand each other better. If you’d like to share your story, please submit it below with an optional photo, and we’ll add it to the web site. Thank you!