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Louisiana Metabolic Disorders Coalition
Support, education, and advocacy for Louisiana residents with rare metabolic disorders
Louisiana Metabolic Disorders Coalition
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  • Home
  • About
    • Disorders & Support
    • Our Board
    • In Memory of Scarlett
    • Patient Stories
  • Events & Programs
    • Upcoming Events
    • Previous Events
  • Resources
    • School Information
    • Dietary Resources
    • Contact a Clinic
    • Bereavement Support Resources
  • Take Action
    • Legislation
    • Calls to Action
  • Contact Us
  • Support Us

Daily Archives: December 6, 2020

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  4. 06

Shannon Holland, President/Treasurer

Our Board of DirectorsBy adminlaDecember 6, 2020

Thank you for checking out our website! I live in Mandeville with my husband and three children. Our middle child has a rare metabolic disorder called Tyrosinemia Type 1. With medication, formula, and a low protein diet she is thriving and is a “typical” kid in almost every way.

LOUISIANA METABOLIC DISORDERS COALITION

We support, educate, and advocate for patients & families affected by metabolic disorders.

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shannon@louisianamdc.org

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