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Support, education, and advocacy for Louisiana residents with rare metabolic disorders
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  • About
    • Disorders & Support
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  • Events & Programs
    • Upcoming Events
    • Previous Events
  • Resources
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Author Archives: adminla

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Show Support for the Newborn Screening Saves Lives Reauthorization Act

Calls to ActionBy adminlaFebruary 12, 2021

The Newborn Screening Saves Lives Reauthorization Act will continue critical federal programs that provide assistance to states to improve and expand their newborn screening programs, support parent and provider education,…

HCU (Homocystinuria) Network America

Disorders, Homocystinuria (HCU)By adminlaDecember 10, 2020

Glutaric Acidemia Type 1 Group (Facebook)

Disorders, Glutaric acidemia Type 1 (GA1)By adminlaDecember 10, 2020

Organic Acidemia Association

Disorders, Glutaric acidemia Type 1 (GA1), Isovaleric acidemia (IVA), Methylmalonic acidemia (MMA)By adminlaDecember 10, 2020

Propionic Acidemia Foundation

Disorders, Propionic acidemia (PA)By adminlaDecember 10, 2020

Citrullinemia (one of many Urea Cycle Disorders) (Facebook)

Disorders, Urea Cycle disorders (Citrullinemia, OTC, Argininosuccinic aciduria)By adminlaDecember 10, 2020

UCD in Common

Disorders, Urea Cycle disorders (Citrullinemia, OTC, Argininosuccinic aciduria)By adminlaDecember 10, 2020

National Urea Cycle Disorders Foundation

Disorders, Urea Cycle disorders (Citrullinemia, OTC, Argininosuccinic aciduria)By adminlaDecember 10, 2020

FOD Family Support Group

Disorders, Fatty Oxidation Disorders (VLCADD, LCHAD, MCADD, SCADD, TFP, CPT1, CPTII)By adminlaDecember 10, 2020

MSUD Family Support Group

Disorders, Maple Syrup Urine DiseaseBy adminlaDecember 10, 2020
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