Shannon Holland, President/Treasurer
Thank you for checking out our website! I live in Mandeville with my husband and three children. Our middle child has a rare metabolic disorder called Tyrosinemia Type 1. With medication, formula, and a low protein diet she is thriving and is a “typical” kid in almost every way.
Christine Parr Vitter, Secretary
Hello, my name is Christine Parr Vitter. I live in Terrebonne Parish where I am a public school teacher. Our family is connected to the metabolic disorder community through our…
Lesley Fandal, Vice President
My name is Lesley Fandal, and I’m a working mom of 3 girls from Metairie, LA. My youngest daughter was diagnosed with Citrullinemia Type 1 in 2016 via Newborn Screening…
KC Singletary
I joined the metabolic community in 2005 when my middle son Will was born. Will has Phenylketonuria, or PKU. My husband and Istarted the first family support group in Louisiana,…
Call for Senate Co-Sponsors of the MNEA
Join us to encourage Senators to support the Medical Nutrition Equity Act (MNEA) which will help secure insurance coverage for medical food & formula for inborn errors of metabolism and…