Shannon Holland, President/Treasurer
Thank you for checking out our website! I live in Mandeville with my husband and three children. Our middle child has a rare metabolic disorder called Tyrosinemia Type 1. With medication, formula, and a low protein diet she is thriving and is a “typical” kid in almost every way.
Kevin Alexander, Vice President
My name is Kevin Alexander, and I live in Shreveport, LA. I am an adult living with PKU and since 2012 I’ve been an advocate for PKU, newborn screening, and…
Christine Parr Vitter, Secretary
Hello, my name is Christine Parr Vitter. I live in Terrebonne Parish where I am a public school teacher. Our family is connected to the metabolic disorder community through our…
Lesley Fandal
My name is Lesley Fandal, and I’m a working mom of 3 girls from Metairie, LA. My youngest daughter was diagnosed with Citrullinemia Type 1 in 2016 via Newborn Screening…