KC Singletary
I joined the metabolic community in 2005 when my middle son Will was born. Will has Phenylketonuria, or PKU. My husband and Istarted the first family support group in Louisiana,…
Jamie Bienvenu
My name is Jamie Bienvenu. I am 44, a wife, and a mother to an 8 1/2 year old daughter. I currently work from home for a dialysis company as a Sr. Patient Account Representative (PAR). I became involved w/ LMDC because my husband has Phenylketonuria (PKU).
Call for Senate Co-Sponsors of the MNEA
Join us to encourage Senators to support the Medical Nutrition Equity Act (MNEA) which will help secure insurance coverage for medical food & formula for inborn errors of metabolism and…
The National PKU Alliance
The National PKU Alliance: The mission of the NPKUA is to improve the lives of people with PKU and pursue a cure. They offer peer and maternal PKU mentoring programs,…
National PKU News
National PKU News provides support and resources to patients and clinicians managing a diagnosis of PKU or a simliar metabolic disorder. Their programs include HowMuchPhe.org, Cook for Love, GO LOW…