Thank you for checking out our website! I live in Mandeville with my husband and three children. Our middle child has a rare metabolic disorder called Tyrosinemia Type 1. With medication, formula, and a low protein diet she is thriving and is a “typical” kid in almost every way.
Hello, my name is Christine Parr Vitter. I live in Terrebonne Parish where I am a public school teacher. Our family is connected to the metabolic disorder community through our…
My name is Lesley Fandal, and I’m a working mom of 3 girls from Metairie, LA. My youngest daughter was diagnosed with Citrullinemia Type 1 in 2016 via Newborn Screening…
I joined the metabolic community in 2005 when my middle son Will was born. Will has Phenylketonuria, or PKU. My husband and Istarted the first family support group in Louisiana,…
