Thank you for checking out our website! I live in Mandeville with my husband and three children. Our middle child has a rare metabolic disorder called Tyrosinemia Type 1. With medication, formula, and a low protein diet she is thriving and is a “typical” kid in almost every way.
My name is Kevin Alexander, and I live in Shreveport, LA. I am an adult living with PKU and since 2012 I’ve been an advocate for PKU, newborn screening, and…
Hello, my name is Christine Parr Vitter. I live in Terrebonne Parish where I am a public school teacher. Our family is connected to the metabolic disorder community through our…
My name is Lesley Fandal, and I’m a working mom of 3 girls from Metairie, LA. My youngest daughter was diagnosed with Citrullinemia Type 1 in 2016 via Newborn Screening…
I joined the metabolic community in 2005 when my middle son Will was born. Will has Phenylketonuria, or PKU. My husband and Istarted the first family support group in Louisiana,…
My name is Jamie Bienvenu. I am 44, a wife, and a mother to an 8 1/2 year old daughter. I currently work from home for a dialysis company as a Sr. Patient Account Representative (PAR). I became involved w/ LMDC because my husband has Phenylketonuria (PKU).