Josey’s story
3/23/2025 – Citrullinemia Type 1. Urea Cycle Disorder. Hyperammonemia. Words that I had never heard of and I didn’t even know existed until 2016. My husband and I received a…
Kelli’s story
7/7/2024- Kelli has been fighting a journey since birth not always easy but we have made it to 15 years old. The day after Kelli was born she was being…
Will Singletary’s story
4/2/2024- Hi, I’m Will Singletary and I have PKU. I’m a senior at Westlake High School in Austin, TX. I was born right after hurricane Katrina in 2005 in Opelousas,…